The Realities of Chronic Back-pain

I realize it’s going to be a bad day as soon as I wake up and try to get out of bed in the morning. A lacerating band of pain envelops my lower back as I make the movement one usually associates with getting up – bending at the waist and lifting the body’s upper trunk. I can’t do it. I have to roll on my right side, the less painful side, in order to get to the edge of the bed, and helped by the pull of gravity, slowly crawl upright.

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Then comes the next ‘step’, I push my legs off the bed, reach a sitting position at the edge of it, put my legs on the floor, and wince and groan until I’m standing upright.

It is 5.45am. I have 30 minutes to take off my clothes, shower, put on my make up, and walk down to my boyfriend’s car, in order for him to give me a lift to work.

I know I won’t be showering today. Each gesture which normally takes one second to make, will, today, take at least a minute. Preparing myself and arriving in time will be just impossible.

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I skip my shower, and start dressing slowly. The clothes I am going to wear today are already hung on the outside of the wardrobe. All I have to do is walk up to them. Slowly.

After shuffling with my back bent forwards, since I cannot stand upright anymore, I realize I am limping. It’s the pinched nerve in my leg acting up again. Figures.

I take down my clothes and realize that I can’t bend my leg to put on my skirt, so I sit down slowly on the bed again and jiggle it around until it’s around my hips. It would have been easier had I worn a dress, but I didn’t know the pain would be so bad yesterday, when I chose which clothes to wear. Walking back to the wardrobe, opening it, and taking down a dress, is too much of a hassle and would take even more time. I can hear my boyfriend finishing his breakfast, and I know he’ll shower and be ready in 5 minutes, so I know I won’t make it.

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Obviously, I have no time for breakfast. Then again, to be fair, I never do. Work starts at 6.45am and there’s only so much I can manage before that.

Done with my clothes, I shuffle to my dressing table, bend forwards slowly and painfully, open the first drawer, and reach for my eyeliner and mascara. Obviously, they have rolled at the back of the drawer again. And I can’t reach any further. Because it hurts. Fortunately I live with my boyfriend whose help is invaluable in these kinds of crises.

While he showers and changes, I manage to put on some make-up. Now all that’s left is to walk down four flights of stairs towards the door, walk to the car, and bend down to get in and sit down.

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It is 6.15am. And I am already trembling with exhaustion.

P.S That was some hours ago. I feel even worse now. I had no painkillers in my handbag at work, so one of my colleagues very nicely offered to go and buy some for me at the pharmacy across the street, since I couldn’t even walk that far…

Yes today is a bad day. Not all days are this bad. One can, at least, hold on to that.

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Outsider

I don’t know how old I was, when I first became  aware of the bubble.

Crouched in a hollow darkness, I always felt as if I was enclosed in a sphere of shadows. A liquid-like transparent force creating a barrier between me and the rest of the world. In slow motion, I moved within it, out of sync with every one else. Almost matching… almost, but not quite.

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Maybe it was the terror, that harsh violent presence which made me stutter and hesitate, which first created the circular protective barrier. Or maybe it was the cruel indifferent light reflecting off everyone else which first brought it into being. For sure, my awareness of it only strengthened it. My shield. My cage.

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For a time, I believed it had gone. Disappeared with a pop. Finished. For a time, I thought I was here, un-veiled, un-masked, just like everybody else.

Of course, I was wrong.

My bubble is still here. It is dark, dank, comforting. Like an old musty blanket I can clutch around me and slap over my eyes whenever I see something which should not be. I am still here, in a way. But really, I am not. Because I do not want to be. I am not with you. I am not with anyone. And no one is with me. No one looks at me. No one wants to.

In the end, the bubble does not make that much of a difference after all.

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Solitude

When you’ve been bedridden for a long time, the sun only a memory, the fresh moving air of the big outside a far-off luxury, your state of mind inevitably changes. You start inventing small everyday rituals and tasks for yourself, not as a way to make time pass, though that’s a part of it, but as a way to keep your mind occupied and your life on a structured path. Being so cut off from everything and everyone also takes its toll. Now, I’m an introvert – I literally hate people, well most of them anyways. However this still gets to me. Ever since I’ve been in here, I started to loose time. To forget things said and done. I would think I’d told someone about a hospital appointment, when in reality I would have done nothing of the sort, and the conversation would have taken place only in my head. Similarly, I would forget physiotherapy appointments, thinking I’d changed dates.

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When you loose your notion of time, something transcendental takes place. It’s like you’re in a world of your own, with its own rules of time and space. Your bedroom becomes the universe, and anything extraneous is only a passing shadow. The mirror of a dream which was real, once upon a time, long long ago.

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Perceiving that one day, perhaps, all this will end and I will once again be part of the world outside is a far off glimmer. I know I am supposed to hope it will happen soon, but I cannot see it. I cannot imagine walking in the street, catching the bus, being in a roomful of people, many of them whom I’ve never ever met before. Strangers. I cannot fathom not feeling the humid warm recycled air of my house. Not being able to rest in bed whenever I feel pain, or tired, or just too depressed to even face the light coming from the balcony. 

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Falling into the soft embrace of tears each time any little inconsequential thing takes place, each time sadness disturbs the placid waters of my day to day life – I am not fit for normal human company. Will I ever be again? Will I ever go back to what I was? And even if I heal physically, will I be able to interact with strangers in a foreign environment, or worse with people who think they ‘know me’? 

Do I really want to?

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Are ppl natural Assholes or is it just Instinct?

What’s the difference between someone who cares for you and someone who’s only using you for his self-serving needs?

Have you ever realized that some of your so-called friends only invite you to go out with them when they have no one else? Or perhaps, that certain people only remember to ask you if you want to meet up when they don’t have a lift? I bet this has happened to anyone.

As I have grown older, I have come to realize more and more how people in general use others. It might be that they are not even aware of it. Maybe they are doing it subconsciously. And yet, magically, as soon as they break up or as soon as their best friend is in a new relationship – there they are again, messaging you to ask what you’re doing during the weekend, or asking whether you’d like to come over for a glass of wine. Sounds familiar?

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And so I ask myself – is everyone really that self-serving? How can one know whether a particular person likes you for YOU, because they enjoy your company – or whether they just need someone, anyone, just to assuage their loneliness or feelings of low self-esteem? Maybe they just want an audience.

And then, suddenly, perhaps it’s you who needs them once in a while – perhaps you are sick, or just down – and what happens? They don’t even bother to ask you what’s wrong, let alone actually care. The only thing they notice is that you’re not there to listen to them anymore, without ever wondering if, for once, it’s you who needs a listening ear or a helping hand. Talk about one-sided.

Or maybe, you might be thinking, I might be too cynical… maybe I just know all the wrong people… right? Thing is, have I known all the wrong people for all the years of my life?

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Maybe it’s just survival instinct. In the end – people are mammals. Our key instinct is to reproduce in order to propagate our genes. And no this has nothing to do with maternal or paternal instinct – of which I have none. It’s simple genetic programming which is found in everyone. Our genes and bodies want to copulate in order for them to propagate. On the other hand, it is our brains which govern our actions. Therefore in my case, I have decided I DO NOT want children. I never wanted children, not even when I was a child myself. Lol so much for maternal instinct.

Anyways, as I was saying, our bodies and genes are programmed to procreate – meaning that they are programmed to feel the need for a mate. That need is what, willy nilly, spurns us on to go out, meet new people, and see if we can click with any of them. It is this sense of survival perhaps, which kicks in when people start using others, in order to get a lift, or to have company, or to hang on to.

Or is it?

Have I lost my faith in humanity, or am I merely trying to find an excuse for these ppl? And if so, why on earth should I?

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ANNIVERSARY of Edgar Allan Poe’s Mysterious Death!

I became insane, with long intervals of horrible sanity’ – Edgar Allan Poe

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Technically, this was yesterday, but I only realized today.

Edgar Allan Poe, his works, and his life, have always had a special fascination for me. He is the daddy of the horror genre and the supernatural mystery. His poems especially are so full of dark romantic agony, that they called to my trembling brimful heart from a very young age. Poe, who married his cousin a child bride of 13 who died only 2 years after the marriage (she was 15). Poe, who forever after wrote sad poems lamenting his pure innocent lost love. Poe who was given to bouts of depression, took laudanum and was a drunk, but published brilliant detective stories, the first of their kind. Poe, who always had a kind of mythological terror of cats, because for him they symbolized the dark wild part of himself, and who feature again and again in small ways in almost all of his prose-work.

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Poe who mysteriously and inexplicably died 166 years ago, yesterday.

Most people erroneously believe he died of his alcoholism but that is not the case. First of all, though he was a known alcoholic, he is reported to have not touched a drop for ages. Also, the person who found him, alone, confused and wandering, in the dark a week after he had disappeared from his home on the way to New York, said he looked sick but not drunk. Secondly, let us keep in mind that the person who wrote Poe’s biography after his death, Rufus Wilmot Griswold was a hated rival who was trying to portray him as badly as possible. He said he was ugly, dirty and unkept, a drunk, a brute and a savage. To which others, Poe’s doctor included, attested he was not. Unfortunately, there was no autopsy done on Poe’s body, and all his medical documents were ‘lost’, so there is no record of what actually took place.

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Theories abound. Some say he died of a heart-attack. Some that it was suicide (he had already overdosed on laudanum once), which is not possible since he was ‘found’ wondering the streets. Some say it was diabetes or tetanus.

Like Poe’s marvelluous detective mysteries, his death too, remains a mystery. Still he played and still plays a big influence on my mode of thought, not to mention my writing and my tastes. ALL HAIL EDGAR ALLAN POE – MASTER OF TERROR!

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Btw this is a very good article on his death – http://www.openculture.com/2015/10/the-mystery-of-edgar-allan-poes-death-19-theories-on-what-caused-the-poets-demise-166-years-ago-today.html

Enjoy 🙂

Yesterday I cried… a lot…

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Yesterday I arrived home, I put on the water-heater in the bathroom, I switched my laptop on, and while it was loading, went to see which book I would read during the evening, since I had just finished reading Patrick Rothfuss’ ‘The Wise Man’s Fear’ for the second time. I knew it had to be good to follow up Rothfuss, so I picked Pratchett and Gaiman’s ‘Good Omens’, which I hadn’t looked at in a while.

My pc had come around by then, and I went to take a quick peek at my email as well as Facebook, before starting my household chores. It was then that I saw it… TERRY PRATCHETT HAD DIED AT 66

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I know, I know, he had Alzheimer, and all Terry-lovers knew we had to loose him someday. But ‘someday’ and ‘dead at 66’ are worlds apart. Not only is 66 not that old by today’s standards… THIS IS TERRY PRATCHETT!! He died while I was working at some boring meeting two hours previously, and I did not know anything about it! The earth did not tremble, the sun did not shatter, my heart did not scream in rage!! I just could not believe it! How could the literary genius of our time be dead, and only a few be so concerned as to even comment on Facebook?

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How can the rest of the world not be in a brainless comatose stupor like me??

I cried while I prepared my work-lunch for today. I sobbed while I laid out my work clothes ready for usage at 6am. I shrieked silently and continuously while I showered. I trembled and shook while I wrote my aunt’s birthday card. I keened while I stared disconsolately at my Terry Pratchett books in the living room. I wailed when I looked outside and realized that the spirit of that great writer, my inspiration, the source of all comic and parodic genius, had left the planet. I blubbered as I gazed at the pc screen and realized that for most people this was no big deal. I bawled and hugged myself as I crouched in a fetal position under the bedclothes.

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Then, I blew my nose, shut up, and thought a bit. NO he was not dead. His books were still there. Part of him lived and would live forever. There would be no more books. He will never sign anything for me. I will never meet him. That is the truth. But the truth is also that he made his great mark upon the world, he inspired millions of people. Made them laugh. Made them cry. Made them be alive.

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Maybe now that he’s dead, he will finally get the recognition he deserves. Most literary geniuses only seem to get it once they are gone anyways, for some weird reason. I guess TV channels will just gobble up the Discworld stories, and I really welcome that. I just hope that they don’t rape them, like the last Indiana Jones movie was raped. I hope they continue having that awesome flavor and fantastic weirdness present in previously rendered films like ‘Hog Father’ and ‘Going Postal’.

We’ll see.

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